Tuesday, September 30, 2014

Get well cards from Sean's friends at school

These were so cute I wanted to save them.
Mario and Bowser shooting fire or maybe throwing up, not totally sure.


I love Sean. Sorry your sick

Have a good time








This one is from Ian and I believe he is saying that Ethan is turning into a hog.

Caleb know's him well.


From Brooklyn

Very verbose



Saturday, September 27, 2014

Last day at the hospital

Can you imagine how wired you would be if you were taking 10 hits on an inhaler every two hours. That's pretty buzzed. Our last day they spread it out to 5 hits every three hours. At home we are doing 5 hits every four hours. When he sits next to me I can hear the crackles in his lungs. Still not much in the way of wheezes but at least he is moving enough air to crackle.

Sean wanted to play chess so I called the "Kids Crew" and they sent over a volunteer to play with him. He was really patient with him.

Sean decided to play with the camera on my cell phone and see what sort of fancy things he could do.

Black and white

Sepia

Negative or as Sean calls it "freaky."

His favorite is "cartoon."

Poor Lovely is falling apart and Sean doesn't want anymore patches because there is so little of the original blanket showing. I've looked all over the Internet and can't find the discontinued fabric.



PCMC doesn't allow visitors under 14 but Khloe waltzed up without getting stopped. She was looking pretty cute in her skirt and hair ribbon.


On our way out of the hospital. I appreciate PCMC. They take really good care of sick kids but being in the hospital is just a drag and it was good to get home where we could sleep in peace and quiet and dark! I do like the "white noise" channel at the hospital the only down size is the TV is on. I went around the room hanging towels on everything. 


Thursday, September 25, 2014

Night One, Day Two

Wednesday night was a tough night. Sean got breathing treatments every two hours, He had two coughing fits that lasted over an hour each. He was miserable.
I found a couple of pictures I took before we went to the hospital. He was miserable at home too, but he was miserable in his own bed.

Alika came and watched him Wed morning before I took him to the doctor.

One of the few times he actually slept.

He ate a couple of strawberries, three chicken nuggets, drank two Sprites today and that was about it. He liked the little man that came on his breakfast tray. 

We were well wired. Sean had his DS, his tablet and my lap top.

A selfie with mom.

Don came over at lunch time because his work is right next to the hospital. He brought Phoebe up after school. His teacher Mrs. Mullins called to see how he was. My phone gets terrible reception in the hospital. He has missed so much school. Jacob left a present for Sean on the porch and Don brought it up. It was a Mario blanket and Sean really liked it. Now he has two Mario throws and they are both really soft.

He played with some Lego's from the play room. He didn't really enjoy it because it was mostly big pieces and not much opportunity for logic or creativity.

Alika came and read library books to him. She also helped him with his homework. She gave him some presents. Sean had asked if people were going to bring him presents. He remembers that from previous hospitalizations.

Phoebe brought him a Luigi hat and mustache.


Don brought him a mine craft head.

Phoebe came up after school. We ordered pizza and had a nice visit. Sean didn't eat but enjoyed having everyone there to play with him.

After Don and Phoebe left Sean was taking a prednisone pill and it dissolved in his mouth. He had a total melt down. I had to ask the nurse to leave for fifteen minutes so we could pull it together. He was just so tired. He went to sleep right after Alika left. Mom's been home with just Teresa in the house. I arranged for the home care agency to come in every morning while I am gone to fix her breakfast and lunch. Carter is taking her dinner. I had started a crock pot of black beans before we left for the hospital. I put the half cooked beans in the refrigerator. Will see if they are still edible. I feel bad for Phoebe Sean has been sick the entire time she has been here.


Wednesday, September 24, 2014

Pneumonia

Last Monday I went to Sean's school. It was the week of Tech Trek and I am chair of the community council which puts me in charge of Tech Trek. It was a huge amount of work, took a ton of time and ultimately was a big success. Tech Trek isn't my story though, Sean is. I walked into the school as the bell rang and Sean came around the corner crying. I touched him and he was burning up. The teachers, Chinese and English came around the corner. If looks could kill, they'd have been in serious jeopardy. I asked how long he'd been sick. He has a health plan that says I am to be called IMMEDIATELY if he gets sick and I have personally discussed the plan with both teachers. Mrs. Mullins said "I promise he just told me he was sick 5 minutes ago and I told him you were on your way to pick him up I didn't know what else to do." Sean told me he got sick in Science but didn't tell anyone until his head hurt really bad and he was so dizzy he couldn't walk. I took him home and he had a temperature of 103. He had a high fever until Friday and then he was feeling a lot better. I thought maybe we were going to get through a virus without it going to his lungs.




On Friday night he started to cough. He coughed through the weekend with low grade fevers. He got sicker on Monday so I took him to the pediatrician. I had started him on Acyclovir Sunday night. We have emergency antibiotics on hand for when we travel.  The pediatrician said his lungs didn't sound to bad and his oxygen saturation's were 90-93. I told the doctor I was really worried about the ED-68 virus that has been on the news. She said "oh you don't have to worry about that only kids that get that are kids with......she looked at Sean and said well, there's nothing you can do to prevent it, just use good hand washing. We decided to give it another day and see how he was. Monday night his saturation's started dropping below 90 so I put him on oxygen. Tuesday night he was worse. He threw up and his fever was back up to 102. I took him in to the doctor at 10 on Wed. They did an x-ray and he had pneumonia. No big surprise. His oxygen saturation's were in the 80's and he needed to be hospitalized. I really like the new pediatrician Dr. Shakib. She just finished her residency at PCMC and knows the medical staff at the hospital. She was able to arrange a direct admit so we didn't have to go through the ER.




His lungs are to tight to even wheeze and he's not moving much air. They have him on oxygen and are doing albuterol treatments with the chamber every two hours. He's starting to move air on the left side and they can hear some crackles on the right so it's opening up a little. He's asleep now and I am in the parent cot. I pulled it up next to his bed. I've been sleeping with him the past nine days so I am there when he has his coughing fits. A little while ago he threw up. I gave him a bath and the nurse changed his bed. When I got him back in bed and hooked up to his monitors, his oxygen levels were really good and the aide came in and took his oxygen off. Sean freaked out he said "I can't breath." I said "she wants to see if you need the oxygen" That's a real duh cause if he didn't need it we wouldn't be here. Sean was crying and said "who gave her permission to take it off?" That made me laugh. His levels dropped and the nurse put his oxygen back on. Smart kid! He's not complaining about the nasal cannula because he feels so much better. They did a nasal swab and it came back negative for RSV, rhinovirus, flu and a bunch of other stuff. I'm not sure how many viruses the swab detects but apparently it's a whole bunch. His lungs look pretty crappy. The right is worse than the left.


I am supposed to teach tomorrow and Friday, Linda is covering for me.
My sick kiddo.



Wu Xiaowen

Wu Xiaowen AKA Phoebe arrived on Thursday. She is a Chinese student teacher who will be teaching at Jennie P Stewart for the school year. She will be living with us for the year. She's cheerful, likes to cook and really wants to be independent. We showed her a bike in the garage and she has been riding to school and the grocery store. She rode home from Walmart carrying a gallon of milk. She's been really good with Sean. He's been sick and out of school since she arrived and she's spent a lot of time helping him with his school work. She's 28 and has a master's in Chinese linguistics.

Monday, September 15, 2014

Judge Catherine Hoskins

We went to Catherine's swearing in ceremony at the Davis County Court House. I am so proud of her!
Catherine and Lynn


Mom came out for the ceremony. She doesn't like to leave the house much she says it is too tiring.


The boys all sat at the attorneys table. 

The swearing in

Robing ceremony

This has always been my favorite picture of Catherine. I took it when I was around 14.

The bailiff's in the back make me laugh. I have no idea what they were talking about. Tonight  when I was putting Sean to bed I explained to him what a judges job entails. I told him that when people  got arrested or went to jail the judge had to decide if they stayed in jail, paid a fine or went home. Sean said "I want to be a judge." Then he thought for a minute and asked "how do they know if they are guilty?" I told him that there were two attorney's who tried to convince the judge that the person was guilty or innocent. After that Sean said "that would be too hard, I don't want to be a judge." Then Sean asked if he could go watch Catherine be a judge,

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